When the Best Already Came

So how long will this heart last? I don’t think  I even wanted to know. What would I do anyway–make a paper chain to countdown Annie’s fleeting days?

While some days that sounds fitting, I’m choosing instead to count up the days we’ve had. On Sunday, we celebrated 730 days with Annie that we’ve been given so far.


17,520 hours we were strongly urged to never count on.


2 whole years with this precious life we chose to keep.


As we look ahead to the next days of her life, it’s difficult. Matt and I admitted to each other that we just got the best year with Annie that we are supposed to ever have: no surgeries, no hospitalizations, no medicines, no delays, no setbacks.

We’ve had a year where we’ve gotten accustomed to her giggle. We count on her midnight milk calls. We listen quietly as she belts out lullabies in the backseat. We wait for the mealtime impersonations and the wry humor she delivers with a bean up her nose and a sarcastic eye roll. We mourn that she’s traded the endearing mumble of “sis-der” for a demanding “Aud-RAY!”

But that’s not what they’re telling us is up ahead. For the next year we have penciled in

  • regular Philly visits (with a 2yo who doesn’t fly free anymore)
  • frequent cardiology checkups
  • auto refilling those red Target prescription bottles
  • Annie realizing her heart is sick
  • potential heart transplant

Sounds fun, right? Of course not. Sounds hard. Sounds scary. Sounds out of my control.

It also sounds like another year with Annie that I’m beyond grateful to be embarking on. I’m not going to fill it with worries and what ifs. I’m going to fill it with gratitude and rejoicing in each day we have.

choose gratitude

So I might make a paper chain after all. Each night before bed, I’ll record something about that day with Annie that I’m thankful for. I’m praying I get to write so many that the chain can decorate our whole house!

I think I’ll keep track of them online too! You’re welcome to join me by checking out #ThankfulForAnnie.




3 thoughts on “When the Best Already Came

  1. Katelyn White says:

    This verse has helped me through some hard times, so I hope that it will help you too!
    – Isaiah 41:10
    ” So do not fear for I am with you, do not be dismayed, for I am your God. I will strengthen you and help you and I will uphold you with my righteous right hand.”
    – God bless you, Annie!!


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s