About: Meet Annie

In December 2013, Annie was diagnosed prenatally with Hypoplastic Left Heart Syndrome (HLHS) or half of a heart.


Annie’s Dad, Mom, and big sister Audrey celebrating that she’s a girl at her gender reveal party. Also the day we heard the searing words, “Something’s wrong with your baby’s heart.”

This life-threatening condition apparently made Annie’s life not worth living and some doctors suggested she be aborted. Annie’s parents didn’t agree. So on April 10, 2014, Annie was born in Little Rock, AR!


She had her first open heart surgery, the Norwood, at 5 days old at the Children’s Hospital of Philadelphia and came home on no medicine 10 days later. She experienced unexpected severe heart failure when she was 8 weeks old and spent 31 days inpatient at CHOP fighting for her life. She had her second open heart surgery, the Glenn, at 3 months old, again at CHOP, and came home 5 days post-op.

Today she’s a joyful, silly, normally-developing, loving, hugging, kissing, jabbering, spunky three-year-old miracle.


In January 2016, she received news that her heart is in severe failure again. While she continues to thrive on the outside, she is not currently eligible for her final surgery to repair her birth heart. She’s been told that soon she will need to list for a transplant. She’ll be reevaluated summer 2017 to see if her birth heart can be salvaged or if it’s time to list for a new one.

Annie heart echo

Annie’s protest to her echo, August 2015.

This is our blog that chronicles the story of Annie: a story of hope and a God who knows what He’s doing.

A few reader favorites: My Sweet Annie Girl, It’s Not Supposed to Go Like That, There Must Be Some Mistake, Born With a Death Sentence, Is Annie Contagious?   The Effort to Forget.

If you’d like to make a donation to Annie’s medical fund, please visit our Go Fund Me account https://www.gofundme.com/7k4550.

Email me at tracynlane@yahoo.com.

All content ©Tracy Lane 2013-2017.


4 thoughts on “About: Meet Annie

  1. Glenda W says:

    I just saw your blog for the first time, but need an update! How did surgery number 3 go? I pray she is recovering well. Let us know!


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